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7897. arkymalarky - 1/13/2014 8:23:24 PM Thanks. She's much better today. If they can control her infection and dehydration her mental sharpness comes back. 7898. arkymalarky - 1/13/2014 8:24:00 PM The problem is maintaining control at home. 7899. wabbit - 1/18/2014 5:08:39 AM I lost a close friend to amyloidosis last week. He was only 59. From the time he was diagnosed to his death wasn't more than about six months and he was pretty miserable most of that time, largely due to chemo. He lost a lot of weight and had no appetite, nothing tasted good. He collapsed and was on life support for two days. He fought as best he could and his wife and children were with him. He was a good man, he'll be missed by many. 7900. judithathome - 1/18/2014 7:52:55 PM Sorry to hear that.
I read the FAQ...didn't find any description of "symptoms"...do you know what his were? I mean, what sent him to the doctor in the first place?
I can understand the symptoms of chemo...I meant the primary ones that made him seek a diagnosis. 7901. wabbit - 1/18/2014 8:28:31 PM He had primary amyloidosis. He was tired all time, which was unlike him. Also edema in his ankles, dizziness, diarrhea, weight loss, and sometimes his arms were numb. The numbness was what really got him, he thought it might be his heart, but when they found very high protein in his urine, they checked his kidneys and got to amyloidosis.
The problem is the symptoms gradually build up and are easy to ignore for anyone who tends to be stoic, as he was. The doctors were talking about a stem cell transplant after he finished chemo. 7902. judithathome - 1/18/2014 8:43:42 PM Thanks...except for the ankles, I have every one of those symptoms...I'm guessing a lot of people have some of those but just chalk it up to general aging.
The thing with the numbness scares me so much I no longer drive. 7903. thoughtful - 1/21/2014 4:35:05 PM So sorry to hear that, wabbit. He was very young.
I've heard of amyloidosis, but only via House....it was always one of their go-to diagnoses like sarcoidosis. 7904. judithathome - 1/21/2014 7:55:27 PM Exactly!! 7905. Jenerator - 1/21/2014 11:41:46 PM Sorry for your loss, wabbit. 7906. thoughtful - 1/25/2014 3:47:38 AM Hubby was considered the 6th brother in a neighborhood family of 5 boys...the oldest passed away many years ago. Today we found out the youngest has an inoperable cancerous brain tumor...they estimate 3 months, but who the heck knows? So sad. Death is never easy, but especially uncomfortable when the victims are your contemporaries or younger. I feel especially badly for his wife....it's not easy to become a widow at any age. So sad. 7907. wabbit - 1/25/2014 8:10:34 PM Thank you, t'ful and Jen - my condolences on your loss also, Jen. 7908. robertjayb - 2/8/2014 11:27:43 PM On Death:
Pleased to see in today's paper a NYTimes article on gains being made for death with dignity. It cites a Gallup Poll from May where 70 percent of respondents agreed that when patients and families wanted it doctors should be allowed to
"end the patient's life by some painless means."
Now legal in New Mexico, Vermont, Montana, Oregon (the first in 2008) and Washington with strong campaigns in Connecicut and other states.
With my NPH condition under control (knock wood) I fully expect to last out the family norms which should give me several more years. Before the implant surgery and while attending Parkinson's support group meetings I began to think of avoiding the fates I saw looming around me.
I hope the movement continues to grow and that it reaches Texas. Of course, New Mexico is nearby.
There is an advocacy group called Compassion and Choices. I must check them out.
7909. robertjayb - 2/9/2014 12:24:54 AM On Life
Try not to miss Paul Krugman's takedown of the wingnuts' latest "falsehood in the "ever-mendacious campaign against health reform.
7910. arkymalarky - 2/9/2014 5:41:43 AM watching want stands mother and his family are going through, it makes you just believe there has to be a better way. 7911. alistairconnor - 2/11/2014 12:33:49 PM A "no shit, Sherlock" moment...
Researchers find direct link between sugar and cardiovascular disease | EurActiv A high sugar diet greatly increases the risk of cardiovascular disease regardless of body weight, according to a new study by the American Centers for Disease Control and Prevention. The study, which is the biggest one of its kind to date and has included more than 10,000 people followed for up to 14.6 years, concludes that people who drink, for example, one soft drink per day increase their risk of cardiovascular disease by one-third. Previously, scientists have said that sugar as empty calories could make people overweight and obese, and by doing so increase the risk of cardiovascular disease. Now the researchers at the Centers for Disease Control and Prevention in the United States have concluded that added sugar - which is found in for example sodas, desserts, sweets, fruity drinks - is directly linked to cardiovascular disease, independent of its effect on the body weight.
7912. arkymalarky - 5/23/2014 6:23:25 PM Well, they gave dad the wrong medicine last night. He's going to be okay, even after throwing up all night long, but I hope heads will roll. 7913. judithathome - 5/23/2014 8:10:24 PM Sheesh.... 7914. arkymalarky - 6/4/2014 4:09:48 PM they reported the incident, conducted an investigation, and fired the young man who made the mistake, and the whole thing set dad back 3 days because he was tired and dizzy and couldn't eat. Now he's doing great. I hate the guy got fired, but you can kill people with a mistake like that. 7915. judithathome - 9/14/2014 6:40:24 PM On Monday, I stopped taking the pills I've been I've been taking for almost 5 months and for the past 6 days, I haven't had one symptom...not one...it has been GLORIOUS!!!
I would flush those suckers down the drain but I fear putting that poison in the water system. 7916. judithathome - 9/14/2014 6:41:07 PM (the pills for my colon that gave me severe side effects)
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